Wednesday, February 27, 2013 - New online database for children and youth with special healthcare needs provides lifesaving details to emergency responders

A coalition of parents, emergency responders, community partners and hospitals, including Gundersen Lutheran, has launched Patient at Risk, a secure online database.

Patient at Risk gives emergency responders specific, individualized instructions for children and youth who have special healthcare needs. The program has been piloted in Milwaukee at Children’s Hospital of Wisconsin, Baraboo, Waukesha and West Allis, and is now being rolled out statewide.

“The paramedics and emergency medical technicians at Tri-State Ambulance are very pleased that the Patient at Risk program has become a reality,” says Tom Tornstrom, executive director, Tri-State Ambulance. “Children make up just a small fraction of our overall responses while children with special needs are even less frequent. The uniqueness of children with special needs makes it very difficult for our medical staff to know and be proficient in many of their health conditions. Having instant access to a child’s medical record and condition-specific instructions can and will provide lifesaving information in emergency situations,” Tom explains.

Patient at Risk allows parents or guardians to create secure, detailed health profiles for their child to store and manage online. This information is converted into an Electronic Information Form (EIF) that can be printed and distributed to community emergency responders ahead of time, and also accessed online at any time, as needed.

“The Patient at Risk program is an important link between children with special needs and emergency medical providers. This type of program can better prepare EMS in the event of an emergency, and can result in improved outcomes for children throughout the state of Wisconsin,” says Kris Edwards, program manager, Gundersen Lutheran Pediatrics.

The program is funded in part by the Healthy Wisconsin Partnership Program (HWPP), a component of the Advancing a Healthier Wisconsin endowment at the Medical College of Wisconsin, and the Wisconsin Chapter of the American Academy of Pediatrics Foundation. Other partners include Gundersen Lutheran, American Family Children’s Hospital, Baraboo District Ambulance Service, Children’s Hospital of Wisconsin, GFWC Oconomowoc Junior Women’s Club, The Regional Centers for Children and Youth with Special Health Care Needs, Ministry Saint Joseph’s Children’s Hospital, St. Vincent Hospital, Waukesha Fire Department, West Allis Fire Department and Wisconsin Emergency Medical Services for Children.

To create an account for your child or for more information, visit

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